RSSEARCH PATIENT REGISTRY

RSSearch Patient Registry

About the RSSearch® Patient Registry

The Radiosurgery Society hosts the RSSearch® Patient Registry, the longest established patient registry dedicated to SRS/SBRT managed by a professional society. In 2020, this multi-platform research and data sharing registry exceeded 31,000 cases and has become a critical resource for radiosurgical investigators world-wide in a wide range of specialties, as well as hospitals, teaching institutions and researchers engaged in the field.

Since RSSearch opened in 2005, the data has served as the foundation for peer-reviewed publications and research; improved quality of patient care; elevated medical decision making; provided access to novel treatments and approaches; and advanced the science of SRS/SBRT. Data mined from RSSearch also contributes to the industry-wide development of clinical and quality guidelines. Click here to view RSSearch publications.  RSSearch Patient Registry is listed on NIH ClinicalTrials.gov: NCT01885299

We welcome new centers to participate in the RSSearch Registry. All participating centers need to have a designated Principal Investigator who is an RSS member in good standing, must receive approval of the RSSearch Registry Protocol at a local IRB/Ethics Committee and execute Data Usage Agreement. For more information email us.

Michael Chuong

"The RSSearch Registry provides a comprehensive and flexible system where we can use existing data fields and also customize new ones specific to our study, which will facilitate the analysis of patients treated on MRIdian at various institutions across the globe. Through our contributions to the RSSearch Registry, we hope to demonstrate how MRIdian can achieve substantial clinical benefit for cancer patients."

Michael Chuong, MD
Miami Cancer Institute

Anand Mahadevan

"The RSS has been playing a vital role in advancing the science of advanced radiation techniques and the RSSearch Patient Registry has been influential in publishing real-world outcomes."

Anand Mahadevan, MD
Chairperson, RSSearch Patient Registry Committee

Iris C. Gibbs

"The RSSearch Registry continues to grow and is a valuable resource for multi-institutional observational studies and prospective clinical trials investigating stereotactic radiotherapy and advancing therapies."

Iris C. Gibbs, MD, FACR, FAAWR, FASTRO
Stanford Medicine

Madhur K. Garg

"Having a comprehensive resource such as RSSearch, which includes both clinical and radiation planning data points, has enabled our faculty and residents to work on several projects, some of which have yielded very interesting findings."

Madhur K. Garg, MD
Montefiore Medical Center


Benefits of participating include:

  • Secure web-based patient management portal serving the global SRS/SBRT patient population, including intracranial and extracranial sites
  • Over 200 data fields including screening, treatment and follow-up information, as well as patient-reported quality of life information
  • Access to aggregate data on over 30,000 cases upon application and approval
  • Click here to download the Request for Aggregate Data FormClick here to see all prior Request for Aggregate Data Forms
  • Huge cost savings compared to purchasing software for managing patient data
  • Easily track patient follow-up and patient-reported outcomes
  • Generate a wide variety of standard and customized reports
  • Convenient and real-time access to your screening, treatment and outcomes data for publication and presentation
  • HIPAA and EU compliant

To find out more about participating in the registry, please email us.


Publications featuring the RSSearch® Patient Registry

Stereotactic Ablative Radiation Therapy (SABR) for Adolescent and Young Adult Malignancies

Singh R, Bishop S, Jenkins J, et al. (August 14, 2024) Stereotactic Ablative Radiation Therapy (SABR) for Adolescent and Young Adult Malignancies. Cureus 16(8): e66890. doi:10.7759/cureus.66890

Improved Local Control following Dose-Escalated Stereotactic Ablative Radiation Therapy (SABR) for Metastatic Sarcomas: An International Multi-Institutional Experience

Radiotherapy & Oncology, Articles In Press, 110020, Published November 23, 2023 DOI:https://doi.org/10.1016/j.radonc.2023.110020

Multi-Institutional Outcomes of Stereotactic Magnetic Resonance Image-Guided Adaptive Radiation Therapy (SMART) with a Median Biologically Effective Dose of 100 Gy10 for Non-Bone Oligometastases

Advances in Radiation Oncology (2022), doi: https://doi.org/10.1016/j.adro.2022.100978

Stereotactic Body Radiation Therapy (SBRT) for Spinal Metastases Real-world Outcomes From an International Multi-institutional SBRT Registry

Am J Clin Oncol; April 08, 2022 - Volume 45 - Issue 4 doi: 10.1097/ COC.0000000000000909

A Multi-Institutional Analysis of Outcomes following Stereotactic Body Radiation Therapy for Management of Metastases from Squamous Cell Carcinomas of the Head and Neck

Journal of Radiosurgery & SBRT 8.1, p. 11-19

Stereotactic Body Radiation Therapy (SBRT) for Metastatic Renal Cell Carcinoma: A Multi-Institutional Experience

Journal of Radiosurgery and SBRT. 2019, 7.1, p. 29-37

Clinical Outcomes Following Stereotactic Body Radiation Therapy (SBRT) for Stage I Medically Inoperable Small Cell Lung Carcinoma: A Multi-Institutional Analysis From the RSSearch Patient Registry

Am J Clin Oncol. 2019 Jul;42(7):602-606. doi: 10.1097/COC.0000000000000561

Stereotactic Radiosurgery and Fractionated Stereotactic Radiosurgery for Vestibular Schwannomas: A Comparison of Clinical Outcomes from the RSSearch Patient Registry

Journal of Radiosurgery and SBRT. 2019;6(1):19-26

Salvage Stereotactic Body Radiation Therapy for Locally Recurrent Previously Irradiated Head and Neck Squamous Cell Carcinoma: An Analysis from the RSSearch® Registry

Cureus 10(8): e3237. DOI: 10.7759/cureus.3237

Stereotactic Body Radiotherapy (SBRT) for Liver Metastasis – Clinical Outcomes from the International Multi-Institutional RSSearch® Patient Registry

Radiation Oncology 2018 13:26 DOI: 10.1186/s13014-018-0969-2

Stereotactic Body Radiation Therapy for Stage I Non-Small Cell Lung Cancer: The Importance of Treatment Planning Algorithm and Evaluation of A Tumor Control Probability Model

Pract Radiat Oncol. 2017 Oct 7. pii: S1879-8500(17)30313-2. DOI: 10.1016/j.prro.2017.10.002

AAPM-RSS Medical Physics Practice Guideline 9.a. for SRS-SBRT

J Appl Clin Med Phys DOI: 10.1186/s13014-017-0773-4

Participating in an International Stereotactic Radiotherapy Patient Registry: The Establishment of Data Collection Pathways

Cureus 9(6): e1413. DOI: 10.7759/cureus.1413

Clinical Outcomes Following Stereotactic Body Radiation Therapy (SBRT) for Non-Resectable Pancreatic Adenocarcinoma

J Radiat Oncol. 2017: 6: 279

Lung Metastases Treated with Stereotactic Body Radiotherapy: the RSSearch® Patient Registry’s Experience

Radiation Oncology 2017 12:35 DOI: 10.1002/acm2.12146

Stereotactic Radiosurgery for Trigeminal Neuralgia: A Retrospective Multi-Institutional Examination of Treatment Outcomes

Cureus. 2016. 8(4): e554. doi:10.7759/cureus.554

Stereotactic Body Radiotherapy for Clinically Localized Prostate Cancer: Toxicity and Biochemical Disease-Free Outcomes from a Multi-Institutional Patient Registry

Cureus 7(12): e395. doi:10.7759/cureus.395

Stereotactic Body Radiotherapy for Centrally Located Early-stage Non-Small Cell Lung Cancer or Lung Metastases from the RSSearch® Patient Registry

Radiation Oncology 2015, 10:113 (15 May 2015) DOI: 10.1186/s13014-015-0417-5

Stereotactic Body Radiotherapy for Early-stage Non-Small Cell Lung Cancer: Clinical Outcomes from a National Patient Registry

J Radiat Oncol. 2015; 4(1): 55–63. Published online 2015 Jan 31. DOI: 10.1007/s13566-014-0177-0

Best of the Radiosurgery Society® Scientific Meeting 2014: Stereotactic Radiosurgery / Stereotactic Body Radiotherapy Treatment of Extracranial and Intracranial Lesions

Future Oncology, Volume 10, Number 15. https://doi.org/10.2217/fon.14.168

The RSSearch Registry: Patterns of Care and Outcomes Research on Patients Treated with Stereotactic Radiosurgery and Stereotactic Body Radiotherapy

Radiation Oncology. 2013 Nov 25;8:275. DOI: 10.1186/1748-717X-8-275

Requests for Aggregate Data

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